Prof. Dr  Piraye Oflazer

                                            İÜ. İstanbul Tıp Fak.  Nöroloji ABD 

                                                 Nöromüsküler Hast. Bölümü

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                                       GENETİK  & ORPHANET & TREAT-NMD İLETİŞİMİMİZ 

                                                     Prof. Dr Uğur Özbek

                                    İÜ. Deneysel Tıp Arş. Enstitüsü Genetik ABD

                                           ( Grubumuzun Orphanet iletişimi )

 http://www.orpha.net/consor/cgi-bin/SupportGroup_Search_List.php?lng=EN&type_list=SupportGroups_by_country&lng=EN&search=SupportGroup_Search_List&data_id=0&TAG=TR

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                                                    TREAT-NMD  İLETİŞİMİMİZ

                                 http://www.treat-nmd.eu/about/membership/members/

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                               EVDE BAKIM KONUMUZDA İLETİŞİM

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                                                        Prof. Dr  Güler  Çimete

                                           Maltepe Üni. Sağlık Bilm. Fak

                                 Çocuk Sağl. ve Hast. Hemşireliği ABD

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